This Tuesday 28 February is World Rare Disease Day, created to raise awareness among the general public and decision-makers about rare diseases and the impacts they have on those affected personally and their families.

Over 400,000 children in Australia have a rare disease (affecting less than 1 person in every 10,000), many of which are chronic and debilitating.  

This Rare Disease Day we are sharing the stories of some Gold Coast families who live with Rare Diseases.